It is with a very heavy heart that I share the devastating news that Connie’s beloved son, Hayden, has passed away. I am absolutely devastated by this loss, and I know so many of us are. Even those of us who didn’t know Hayden personally feel like we knew him, seeing him shared so lovingly on Connie’s scrapbook pages and through her social media. Through those glimpses, we came to know a sweet, special boy/man who was deeply loved and brought so much joy to Connies life.
We all know and love Connie. She is truly one of the kindest, most genuine people in our community, and my heart breaks for her and her family. Please join me in lifting Connie, her husband, and their entire family up in our love, prayers, and support during this unimaginable time.
Message from Tracy (Trixie Scraps),
"Hi everyone… I’m heartbroken to be coming to you all today with this news. As you know, Connie’s son Hayden has been ill and in the hospital off and on for the last several months. He took a turn for the worse and recently it seemed his organs had begun to fail. Overnight it became clear that God was calling him home. He took his last breath early this morning.
Connie has asked me to help her share this with you all, as she and her husband take the time they need to process and grieve. I know she will covet and appreciate your thoughts and prayers for their family as they come to terms with this sudden and unexpected loss. Hayden was a good boy… one of the best “kids” I’ve ever known and we will miss him dearly.
She will understandably be away for a while. Thank you for being patient until she feels ready to come back to work. Reach out to me or Ginger (@GingerScraps) if you have an urgent need of help in the meantime and we will do our best to fill Connie’s shoes. I love you, bestie."
*Editing (Sunday 7pm CST) to say:* Connie asked me to thank you all for the outpouring of support and love. It means so much to have so many people who care for her and her family. That said, she is getting a LOT of private messages and she truly doesn’t have the bandwidth for all of it right now. Those who have lost a loved one probably understand the battle that is moving from one thought to the next, especially when everything is so fresh.
So for now, if you would like to share condolences, please do so here in this thread. Please do not tag Connie or send private or direct messages. We need to help cut down on the mental load she’s feeling as she processes everything. She asked me to express her gratitude to all of you and just needs some time and space to grieve.
I have heard that many have asked if they could send flowers, cards or financial donations for expenses. If you feel led to, it would mean a great deal to Connie and William if you would donate to this organization in Hayden’s name.
cgdaa.org
We all know and love Connie. She is truly one of the kindest, most genuine people in our community, and my heart breaks for her and her family. Please join me in lifting Connie, her husband, and their entire family up in our love, prayers, and support during this unimaginable time.
Message from Tracy (Trixie Scraps),
"Hi everyone… I’m heartbroken to be coming to you all today with this news. As you know, Connie’s son Hayden has been ill and in the hospital off and on for the last several months. He took a turn for the worse and recently it seemed his organs had begun to fail. Overnight it became clear that God was calling him home. He took his last breath early this morning.
Connie has asked me to help her share this with you all, as she and her husband take the time they need to process and grieve. I know she will covet and appreciate your thoughts and prayers for their family as they come to terms with this sudden and unexpected loss. Hayden was a good boy… one of the best “kids” I’ve ever known and we will miss him dearly.
She will understandably be away for a while. Thank you for being patient until she feels ready to come back to work. Reach out to me or Ginger (@GingerScraps) if you have an urgent need of help in the meantime and we will do our best to fill Connie’s shoes. I love you, bestie."
*Editing (Sunday 7pm CST) to say:* Connie asked me to thank you all for the outpouring of support and love. It means so much to have so many people who care for her and her family. That said, she is getting a LOT of private messages and she truly doesn’t have the bandwidth for all of it right now. Those who have lost a loved one probably understand the battle that is moving from one thought to the next, especially when everything is so fresh.
So for now, if you would like to share condolences, please do so here in this thread. Please do not tag Connie or send private or direct messages. We need to help cut down on the mental load she’s feeling as she processes everything. She asked me to express her gratitude to all of you and just needs some time and space to grieve.
I have heard that many have asked if they could send flowers, cards or financial donations for expenses. If you feel led to, it would mean a great deal to Connie and William if you would donate to this organization in Hayden’s name.
CGD Association of America
An independent organization with the largest community of patients with Chronic Granulomatous Disease and X-linked carriers.
cgdaa.org
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