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Thread: Purple Monsters

  1. #1

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    Default Purple Monsters

    This is something I just wrote recently. My son was diagnosed with epilepsy in 2009 when he was 4yrs old. Only our family and close friends know, until recently when I decided it was time to share with the world to help raise awareness.
    You can read the story HERE.


    Purple Monsters

    mommy i think i've got a "monster" inside me
    it feels as if it's controlling me
    every time I start to shake
    the "monster" seems to be awake

    can you tell me why I feel this way
    why I can't control my arms or legs
    whenever the "monster" comes out to play
    can you please just make him go away

    i don't want this "monster" to come out and play
    not here at school, no not today
    i just want to enjoy my recess
    and not have to sit down and rest

    mommy could you put the "monster" in time out
    and never ever let him come out
    i'm so tired of the "monster" inside me
    i hope they find a cure for this, please...

    My sweet child it's killing me
    I feel helpless and I feel weak
    To watch the "monster" take control
    Leaves my heart with a gaping hole

    Doctor can you please explain
    Why my child has these things
    Doctor can you put an end
    To all the terrible things within

    I can't stand to watch my child like this
    It all just feels like an evil trick
    All I do is pray for an end
    To the "monster" living inside him

    Son I wish I could take this monster away
    Right here and now, yes I would do it today
    If my prayers are answered the "monster" will flee
    I really hope they find a cure for this and soon.....Please.

    February 2015
    Kiana Donae


    I even made a layout as well.



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  3. #2

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    Default Re: Purple Monsters

    Thank you for sharing this. I pray that there may be a cure found for this.
    Signature created using My Garden by Trixie Scraps

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  5. #3

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    Default Re: Purple Monsters

    Thank you Anne. I appreciate you reading and commenting. And for the well wishes on a cure.


  6. #4

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    Default Re: Purple Monsters

    Thank you for sharing - it's not easy when our kids are dealing with something we can't control. ::hugs::

  7. #5
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    littleradtrio is offline *GingerBread Lady*
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    Default Re: Purple Monsters

    Big hugs to you. I too was diagnosed at age 7 with epilepsy. I had the seizures like you see in the movies - eyes rolling back, loss of consciousness and convulsions but luckily I was able to tell when I was going to have one, unlike some people who suffer from epilepsy. I was also fortunate in that I "outgrew" it. My last seizure was over 25 years ago. I'll pray for your little guy.

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  9. #6

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    Default Re: Purple Monsters

    Thank you so much. My son too has the "auras" where he can tell when one is coming. Praying for a cure or that he "outgrows" them!


  10. #7

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    Default Re: Purple Monsters

    That must be really difficult/ Thanks for sharing with us.

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  12. #8

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    Default Re: Purple Monsters

    Kiana, thank you for sharing with us. Awesome page and I always love your poetry.
    Joan


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  14. #9

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    Default Re: Purple Monsters

    Quote Originally Posted by paperlady View Post
    Kiana, thank you for sharing with us. Awesome page and I always love your poetry.
    Quote Originally Posted by meagan43 View Post
    That must be really difficult/ Thanks for sharing with us.
    Thank you both so much for reading and empathizing.


  15. #10

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    Default Re: Purple Monsters

    Thanks for sharing your story and beautiful layout. I am a retired nurse. I cared for numerous people who suffered from epilepsy. I understand what you are going through. Hugs and prayers to you and your family.





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