This is something I just wrote recently. My son was diagnosed with epilepsy in 2009 when he was 4yrs old. Only our family and close friends know, until recently when I decided it was time to share with the world to help raise awareness.
You can read the story HERE.
mommy i think i've got a "monster" inside me
it feels as if it's controlling me
every time I start to shake
the "monster" seems to be awake
can you tell me why I feel this way
why I can't control my arms or legs
whenever the "monster" comes out to play
can you please just make him go away
i don't want this "monster" to come out and play
not here at school, no not today
i just want to enjoy my recess
and not have to sit down and rest
mommy could you put the "monster" in time out
and never ever let him come out
i'm so tired of the "monster" inside me
i hope they find a cure for this, please...
My sweet child it's killing me
I feel helpless and I feel weak
To watch the "monster" take control
Leaves my heart with a gaping hole
Doctor can you please explain
Why my child has these things
Doctor can you put an end
To all the terrible things within
I can't stand to watch my child like this
It all just feels like an evil trick
All I do is pray for an end
To the "monster" living inside him
Son I wish I could take this monster away
Right here and now, yes I would do it today
If my prayers are answered the "monster" will flee
I really hope they find a cure for this and soon.....Please.
© Kiana Donae
I even made a layout as well.