View Full Version : Man, I sure could use

09-20-2012, 11:43 PM
some extra prayers! As many of you know of you know my great nephew was born last week with a heart condition called Tetrology of Fallot. I have posted some information on FB such as they will begin the referral process at 1 month and baby Easton will have open heart surgery at 3 months. Wha hasn't been posted on FB is that his uncle (mom's brother) died of this same heart condition at 10 days old. Easton's is VERY mild and the doctors expect a 99% full recovery. But there is always the fear that Easton could be the 1%.

Just moments ago I got a call from my sister that my next nephew (due in February) has been preliminarily diagnosed with Down's Syndrome. I looked it up, sounds like it may have been the quad screen? Anyway, they will be goin next week for further testing including a specialized ultrasound that according to the OB is very accurate in diagnosing Down's.

This has just been an overwheling week! :(

Thanks guys, I KNOW I can always count on you ladies for support without judging!!


09-21-2012, 12:34 AM
I'll be praying for your family Missi. Both scenarios are quite scary, but with prayers anything is possible.

09-21-2012, 03:29 AM
Prayers said for you and your family Missi!

09-21-2012, 04:01 AM
Praying for your family, Missi.

09-21-2012, 05:43 AM
Hang in the Missi! Love you!

09-21-2012, 07:55 AM
My heart and prayers are with you and your family in this hard time.

09-21-2012, 01:49 PM
oh my, that's a lot to deal with...will be praying for your family and those beautiful babies. and sending {{{hugs}}} to you.

09-21-2012, 02:57 PM

09-21-2012, 06:14 PM
oh Missi...sending lots of prayers and hugs your way. Baby blessings...

09-21-2012, 06:26 PM
What a lot of unknowns to be facing at once! You and your family are in my prayers Missi.

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09-21-2012, 10:24 PM
Prayers being said Missi!!!

09-22-2012, 05:08 AM
Sending you and your family prayers, Missi! I have been there with my youngest son, now 2 who was born with Transpositioning of the Great Arteries. I actually made a book on shutterfly if you are interested. I must warn you though, the pictures of him are VERY graphic. They are from the day he was born until he was brought home 5 weeks later after open heart surgery. It may help you understand open heart surgery. You can PM me if you are interested in seeing the book. Looking back now, I have never been more terrified in my life...and never more strong. I'm here if you need any info!

09-22-2012, 01:54 PM
Awwww Missi, I am so sorry you and your family are dealing with so much right now. Working in a children's hospital here in MN, I see this sort of thing on a daily basis, and have seen many miracles, so be strong and postive! You and your family are in my thoughts. Keep us posted (((hugs)))

09-27-2012, 12:25 PM
It's been several days, any updates???

09-27-2012, 02:24 PM
Baby Easton is home and as far as I know doing well and just waiting to start the referral process for his open heart surgery which should be around Christmas.

Baby Skyler (the one that may have downs syndrome) has an appointment (well my niece does really, lol) October 9th with an ultrasound and blood work to confirm or rule out Downs. I know it is not the end of the world, but we are praying it is ruled out!

Thanks for checking on us! I will update once we know more.

09-28-2012, 06:29 AM
You are in my prayers always Missi <3